Organ donation

Today

Sam Leith

Rachel Clarke: The Story of a Heart

48 min listen

My guest in this week’s Book Club podcast is Rachel Clarke, author of the Baillie Gifford longlisted new book The Story of a Heart. Rachel tells me how she came so intimately to tell the story of 9-year-old Keira, whose death in a car accident and donation of her heart gave a chance at life to a dying stranger, Max. She describes the medical and conceptual changes that led up to that extraordinary possibility and explains how, as a medic, you have to be able to combine technical professionalism with a sense of the sanctity of the human beings you work with. And she catches us up on how Max is

Tuesday

Isabel Hardman

The heart-rending story of a child’s heart transplant

Max Johnson’s life while he waited for a heart transplant had become so miserable and traumatic that he didn’t care whether he carried on or not. Indeed, the colourless, almost lifeless nine-year-old recorded a video saying he wanted to die. His parents felt as though they were on ‘death row’ as they waited for a donor. They knew, too, that the call announcing there was a heart for their son would mean that somewhere else in Britain a family was mourning. They would benefit from the sudden death of someone they were initially only told was an ‘age-appropriate donor’. Max’s mother read between the lines: her son was getting the

Thursday

Melissa Kite

My organ donation opt-out hell

Opting out of organ donation was one of the hardest things I’ve done in a while. I don’t mean the decision was hard. There’s no way I’m donating my body parts to the state. The hard bit was completing the online form and getting the NHS to accept my decision. If you didn’t notice, the law changed on 20 May so that everyone over 18 must fill out a form if they do NOT wish to be carved up after death. If you don’t submit this form, your organs automatically become the property of the state and, once they’ve taken the bits they need, your relatives get to bury what’s