Will Alta Fixsler be allowed to die at home?

If your severely disabled two-year-old daughter is dying, should you be allowed to take her home for her final hours? It sounds like the answer should be a simple ‘yes’. But in the law surrounding parents, children and healthcare, nothing is that simple.

Alta Fixsler’s parents have been repeatedly thwarted in their efforts – as they see it – to do their best for their daughter. First, Manchester University NHS Foundation Trust sought to withdraw life-saving treatment for Alta. A judge subsequently agreed that it was in Alta’s ‘best interests for the treatment that is currently sustaining her precious life…to be withdrawn’. This was in spite of her parents seeking to take her to Israel for treatment. Alta has now effectively been banned from leaving the country.

Now, as her parents make their last request – to bring Alta home from hospital – the NHS Trust is again refusing permission. This time, they appeal not to law but to logistics.