Kate Womersley

Why did no one diagnose my sister’s TB?

Arifa Akbar tells the harrowing story of how the health service failed to detect her sibling’s TB, and the violent bullying she received at home

Fauzia, aged seven (left) and Arifa, four, at their grandparents’ home 
issue 12 June 2021

In 2016, Arifa Akbar’s elder sister, Fauzia, died suddenly in the Royal Free Hospital, London at the age of 45. Until the last hours of her life, the cause of her coughing, chest pain, night sweats and breathlessness had eluded a series of baffled experts. But you do not need a medical degree to hazard a guess at what might have been behind these symptoms. From Keats’s famous death to the consumptive heroines of 19th-century opera, spots of blood on a handkerchief were all that was missing to complete the picture. Only after Fauzia had a catastrophic cerebral haemorrhage, however, did someone think to test a sample of her spinal fluid for tuberculosis. It was positive. Sense came too late. The mycobacteria had disseminated through her organs and were nesting in her brain.

Diagnoses are stories; why had the doctors not thought of this one? TB is not a disease of the past, however mythologised it has become.

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