The struggle of summer with a disabled child

Day one of the school holidays this year set the tone for the sprawling six weeks ahead. My teenage son rolled out of bed at a leisurely 1.05 p.m., by which time my daughter had smashed her head repeatedly against the kitchen wall, bitten my leg and trashed our living room. And so began a typical ‘summer break’ for a family with a disabled child.

The gap between holiday provision for children with, and without, special needs and disabilities (SEND) during summers has long played out under my roof because I have one of each. Before my non-disabled son reached an age when he could sleep in all morning, I would enrol him in play schemes and clubs or lean on loving grandparents to entertain him while his dad and I worked; the typical summer juggle of so many parents.

For my daughter, however, it has been a more frustrating story.