Lyme disease and me

Some medical experts claim that Lyme disease is worse than cancer. It’s not a competition, but I do know one thing: at least if you’ve got the Big C you get sympathy, understanding and prompt treatment. With Lyme you’re pretty much on your own.

This isn’t a plea for public sympathy. I’ve had Lyme for God knows how long — decades possibly — and though it has disrupted my health and my life in myriad weird, torturous and sometimes hideous ways, I still consider myself one of the fortunate ones. First, it hasn’t killed me; second, I’ve had some state-of-the-art stem cell treatment which with luck will eventually cure me. But it’s definitely not a condition I’d recommend.

It starts, as you probably know, with a bite from an infected tick. These are everywhere — the Scottish Highlands, the south coast, Richmond Park — and can be as tiny as a poppy seed.