At the Centre for Rare Diseases, the car park was full and lots of people were milling about.
I pulled into a private space I wasn’t meant to be in so that I could let my mother out of the car by the front door. I then sat in the car waiting, watching the rare people come and go.
On further inspection of the website, it turns out that a rare disease is not necessarily something that happens rarely. A rare disease is a condition affecting less than one in 2,000 people. However, ‘with more than 7,000 individual rare diseases, their collective prevalence is about one in 17 of the general population’. So not rare at all, in terms of how likely it is that you are going to get one. They really ought to put rare in inverted commas.
Nothing rare, or ‘rare’, has ever happened to anyone in my family before, so far as I know.
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